TASP has gathered some important articles, curricula, tools and videos to help parents with cognitive limitations and the people that support them.


COVID-19 Resources have been moved to their own page HERE


Legal Decisions/Guidance

Oregon, December 2019: Office for Civil Rights (OCR) at the U.S. Department of Health and Human Services announced that it has entered into a voluntary resolution agreement (VRA) with the Oregon Department of Human Services (ODHS) concerning the rights of parents with disabilities in ODHS Child Welfare Programs (CWP).

  • HHS OCR Secures Voluntary Resolution and Ensures Child Welfare Programs in the Oregon Department of Human Services Protect Parents with Disabilities from Discrimination: Read the letter HERE
  • Rewire article on the case, agreement, and discrimination against parents with disabilities HERE

Sara Gordon Case, Massachusetts, January 2015


Articles and Fact Sheets

  • Fact Sheet:  Parents with Intellectual Disability

This article uses a question and answer format to provide basic information about parents with intellectual disabilities and their need for support

https://www.thearc.org/what-we-do/resources/fact-sheets/parents-with-idd

  • Enhancing Social Connectedness of Mothers with ID

This article describes how to engage mothers with intellectual disabilities in a shared social group that feels safe and provides opportunities for learning. A study by David McConnell, PhD; Maurice Feldman, PhD; Marjorie Aunos, PhD and Laura Pacheco, MSW

https://achancetoparent.net/wp-content/uploads/2015/03/Social-Connectedness-of-Mothers-with-ID.pdf

  • The Intersection of Child Welfare and Disability – Focus on Children

This newsletter provides a comprehensive set of articles that explore challenges and solutions for supporting parents with intellectual disabilities.

http://cascw.umn.edu/portfolio-items/fall-2013-cw360/

  • New Ways of Thinking About Parents with Intellectual Disabilities

This article describes how attitudes and approaches to supporting parents with intellectual disabilities have changed. The author makes several recommendations for best practice.

https://achancetoparent.net/wp-content/uploads/2014/04/ImpactICI-IrwinSexuality.pdf

  • Success Stories in Parenting with Intellectual Disability

These case studies are based on actual cases. Participating families have given consent for their stories to be shared.

http://www.idrs.org.au/support-parents/cnp-stories.php

  • Research Summary and Seminal Peer-Reviewed Research-based Journal Articles on Parents with ID and Their Children.  A list by Dr. Maurice Feldman.

Provided by Dr. Maurice Feldman, this includes a research summary and list of seminal peer-reviewed journal articles on parents with learning difficulties and their children. He notes the list of 32 articles is by no means exhaustive, and does not include influential books and book chapters. Nonetheless, looking at the list of articles, several key themes emerge, as well as areas where more research is needed.

Research Summary and Journal Articles on Parents with ID and Their Children.  A list by Dr. Maurice Feldman.


Tools & Curricula

  • Map of Current State Legislation Supporting Parents with Disabilities

http://heller.brandeis.edu/parents-with-disabilities/map/index.html

  • Easy to read “How To” booklets

Find easy-to-read “how-to” booklets for parents with intellectual disabilities.

http://www.changepeople.org/

  • Parenting in Pictures

Access photos that show how to parent in pictures – a visual support for parents with Intellectual Disabilities.  http://raisingchildren.net.au/parenting_in_pictures/pip_landing_page.html

  • Simple Home Fixes

Find strategies for organizing a home to make parenting easier for parents with disabilities.

https://www.redfin.com/blog/simple-home-fixes-to-ease-parenting-with-disabilities

  • Enabling Parenting with Support – Working with Parents with Learning Difficulties

This training pack will help managers to assure that staff have the knowledge and skills needed to support parents with learning difficulties.

https://www.pavpub.com/enabling-parenting-with-support/

  • Supporting Families When Parents Have Intellectual Disability

This curricula can be used to build your agency’s capacity to support parents with intellectual disabilities. Although the material is dated (2002) many people in the field still find it useful.

http://www.srcp.org/pdf_versions/supportingfamilies.pdf

  • Supporting Parents with Disabilities: Resource Binder

This binder contains a comprehensive binder of practical resources and articles that may be helpful in supporting parents with disabilities.

https://soonersuccess.ouhsc.edu/Portals/1024/assets/Electronic%20Resource%20Binder%20Nov%202017.pdf

  • Communicating with Parents with an Intellectual Disability

The communication strategies described on this site can help ensure that information is presented in a way that parents can understand, and that they are given the opportunity to express their views.

http://idrs.org.au/makingsense/workers/communicating-with-parents-with-an-intellectual-disability/

  • Sleep Resources for those diagnosed with Autism Spectrum Disorders

Discover how autism affects sleep, and what non-drug sleep therapies can help adults and children with ASD get better sleep.  HERE

  • What do all those acronyms mean, anyways?

A number of resources are available to assist with the various and many acronyms used in the field of supported parenting and the disability world.

ADA Acronyms and Abbreviations

Disability and Special Education Acronyms


Videos:

  • Prevention – Supporting Parents with Developmental Disabilities

This interview with a parent with intellectual disabilities describes what is helpful in family support.

https://www.youtube.com/watch?v=QZx8dGG7Oys

  • Sex, Love, and Life: Navigating Womanhood with a Disabilities

Women with disabilities experience womanhood in a variety of ways, but we rarely get to see these nuances in media. Newsy set out to explore the intersection of womanhood and disability, including: sex, love and dating; pregnancy; motherhood and adoption. For each of these areas, we get to know a woman as she experiences a big moment in her life — as well as take a deeper look into the larger issues concerning the disability community. Newsy partnered with Access Living to tell stories about how these modern, resourceful women highlight the vast and varied complexities of what it means to be a woman.

https://www.newsy.com/series/sex-love-and-life-navigating-womanhood-with-disabilities/

  • Working with Parents Who Have Cognitive Limitations

This evidence-based curriculum provides guidance to teachers, nurses and social service providers in working with parents who have cognitive limitations.

https://www.irised.com/products/working-with-parents-who-have-cognitive-limitations

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