TASP got a grant from the WITH Foundation.  The WITH Foundation promotes the establishment of comprehensive healthcare for adults with developmental disabilities that is designed to address their unique and fundamental needs.

The grant is to make Training Materials for Health Providers to Effectively Support Parents with Intellectual Disabilities. TASP is working with the Association of University Centers on Disabilities (AUCD) on this grant.

We want to hear from parents with intellectual and developmental disabilities. We want to know what it is like for you to get healthcare. We also want to hear from healthcare professionals. Your thoughts and ideas will help us build training for healthcare professionals.

See the full press release HERE.

Take one of the surveys below to lend your voice to this project.

Drawing of a family in the hospital with a newborn baby.
Original drawing by Ivanova Smith, 2023

Parent Self-Advocate Survey

This survey is for parents with intellectual and/or developmental disabilities. We want to know about getting healthcare for you or your child(ren). It can be filled out by a parent with IDD. It can be filled out by friends or family of parents with IDD. It can be filled out by people who work with parents with IDD. It is 11 questions. It should take about 5 minutes to complete.

Healthcare Provider Survey

This survey is designed to gather information from healthcare providers regarding challenges they may experience in providing successful supports and services to parents with intellectual and/or developmental disabilities (IDD). We hope the information will guide training modules to improve services and support for parents with IDD. It can be taken by any healthcare professional, or anyone who works in a healthcare setting.

The survey is 18 questions and should take around 5 minutes to complete.

Don’t want to take a survey?

Do you still want to share your experiences?  Leave a video telling us about your experiences.

Call TASP for a paper copy, or if you need assistance completing the survey: 1-800-599-8810

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